Huntington’s Disease Society of America

The Huntington’s Disease Society of America is the largest 501(c)(3)
non-profit volunteer organization dedicated to improving the lives of
everyone affected by Huntington’s Disease. Founded in 1968 by Marjorie
Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD,
the Society works tirelessly to provide the family services, education,
advocacy and research to provide help for today, hope for tomorrow to the
more than 30,000 people diagnosed with HD and the 200,000 at-risk in the
United States. Notably, HDSA founded the HDSA Coalition for the Cure, a
collaboration of 16 international researchers, as part of the HD Drug
Research Pipeline, and supports research which develops potential
therapies to treat and eventually cure HD; and HDSA also supports 21
Centers of Excellence at major medical facilities throughout the U.S.,
where people with HD and their families receive comprehensive medical,
psychological and social services, in addition to physical and
occupational therapy and genetic testing and counseling. The Society is
comprised of 46 local chapters and affiliates across the country with its
headquarters in New York City. Additionally, HDSA hosts more than 160
support groups for people with HD, their families, caregivers and people
at-risk, and is the premiere resource on Huntington’s Disease for
medical professionals and the general public. To learn more about
Huntington’s disease and to get involved in HDSA, please visit or call 916-927-4400.

The information above can be found on the official website of Huntington’s Disease Society of America. For more details about the organization and to find out how you can volunteer, please visit their website:

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